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By JANET BROWNE Francis and Des Toner don't want their daughter, Kathleen to grow up being 'different.' Diagnosed as having cystic fibrosis at six weeks, Kathleen doesn't look any different than the average 15-month old child, although she is "smaller and skin- nier" according to her mother. Her lifestyle isn't much different either, except that she must take 16 en- zym capsules daily in order to be able to digest food, and she is much more. susceptible to colds, allergies, and other infections. "We really don't know what the future will hold," says Francis Toner, "but for now, we'd just like her to grow up as normally as possible." CF is an inherited disease which affects approximately one in 2,000 children. Those with the disease. take astounding amounts of pills daily, as their bodies are not equip- ped to absorb all the nutrients they need from food, which is why they often suffer from poor nutrition and growth. The disease also affects the lungs, as large amounts of mucus restricts the normal breathing fun- ction. Many CF patients are treated daily by physiotherapists, and must breathe in antibiotics through a mask. Kathleen hasn't yet required either treatment. "But we'd be naive to think she won't need physio and the mask in the future," says Toner. According to genetic probability, there was less than a 1 per cent chance that the Toners would have a child with CF. But they suspected it at an early age when she didn't put on weight. "It was a shock," explains Toner, "but "We were"aware of what CF was. Some parents don't know ,anything." Toner says taking care of her daughter "isn't that much extra woik," apart from administering the pils and keeping a close eye on her diet. Kathleen must eat foods that are high in calories in order to keep her weight up. During the summer extra salty foods are ad- ded to her diet as she is abnormally apt to become dehydrated. The most disturbing effect of this disease is that the lives of those with CF are cut short. Females are expected to live to about 21, and males only ten years longer. Most die from some form of lung disease. But Francis Toner describes her attitude toward her daughter's condition as "optimistic, but not unrealistic." "We're not expecting a cure within her lifetime, butin the last 10 years, research has come a long way." FROM PAGE 2 year for five yearb. "Any charges will be charged back to Durham Recycling which has budgeted the amount under Coming events FUN WITH EVOLUTION Whitby museum and the Ontario Science Centre will present "Fun With Evolution" July 1-9, 1 to 2:30 p.m., at the museum (Kendalwood plaza, opposite Kelsey's). The program is for those 7 to 12 in age. Call 436-6679. AUCTION SALE The Whitby Youth Concert Band is holding an auction sale on Satur- day, June 27 from 11:30 a.m. to 4 p.m. at the Whitby Curling Club. Funds raised will help the band at- tend the '88 Olympies in Calgary and the International Week of Music in Bristol, Englan What Toner is hoping for is a method of "treating the cause, rather than the symptoms, or "something that works like insulin does for diabetics." Scientifie discoveries in the past have made the lives of CF patients a lot easier, and a lot longer. In the 1960's, their life span was only six years. A recent scientific breakthrough marked the closest researchers have come to locating the CF gene. But according to the Canadian Cystic Fibrosis Foun- dation, "research projects must be turned down each year due to insuf- ficient funding." operating costs," aaded finance chairman Jim Witty.'" As far as I'm concerned this is an in-and-out en- try. I1feel comfortable with this financially." Whitby Mayor Bot Attersley, in an I-told-you-so speech, said he had warned council when recycling talks initially started that it should not give an "open cheque book" to Durham Recycling but rather demand financial statements to back up any requests. "Durham. Recycling is not ac- countable to the taxpayers of this Region...we need stronger representation on their board of directors," said Attersley. Witty and Gerry Emm, chairman of works are now the two represen- tatives. After much more debale, Scugog councillor Lawrence Malcolm summed it up for his peers by reminding them they had already sanctioned the purchase of some 80,000 boxes to be used in the program as well as earlier giving the okay to build a new recycling centre. .,, ., . . . .>, else." "It helps when you know there are other people out there trying to raise money. Living in Whitby aiso helps - it's a small town, and you feel like people care more. The neighbors are great." Whether or not a method of con- trolling CF will be found within Kathleen's lifetime, nobody knows. But the Toners have a very positive outlook on their situation. "It's really larger than life unless you're living it," says Francis Toner. "Kathleen's always in a good mood, and she's so great to have around." WHITBY FREE PRESSrWEDNESDAYJUNE 24.198,1,PAGE WHITBY FREE PRESS WILL BE PUBLISHING ON DEADLINES FOR DISPLAY AND CLASSIFIED ADS WULL BE* 12 NOON, MONDAY, JUNE 29 OFFICE WILL BE CLOSED JULY 1st, 1987 MTC reverses decision; road funding approved The Ministry of Transportation and Communication (MTC) has reversed an earlier decision and has approved $333,000 in funding for lights at the Dundas St. W./Byron St. intersection and for im- provements to the Dundas St./Gar- den St. intersection. The request was originally tur- ned down by MTC due to lack of 'funding. However, with the recent Liberal budget, MTC was allotted additional money and has now ap- proved the funds for Whitby. Reconstruction of the Dundas St./Garden St. intersection in- volves putting in proper left turning lanes and placing a median on Dundas St. Total cost of the work is estimated at $320,000. MTC will pay $288,000 while the Town will pay $32,000 which was approved in the 1987 budget. The lights are expected to cost $50,000 with MTC paying $45,000. Provision was made in the Town's 1987 budget for its $5,000 share. Tenders forthe two projects will be called in early July with con- struction expected to start in the latter part of August. Garage sales 0K KATHLEEN TONER The Toners are now participating in a psychological research project which deals with the psychological problems of CF patients and their families. They also participate in fundraising activities run by the CCFF. The Durham chapter of the CCFF holds monthly meetings at the Whitby library in order to educate parents and to help them cope with the responsibilities of raising a child with CF, and organize fun- draising. "§The meetings really help," says Toner. "They're right in the neigb- borhood. We've found out more from them than from anywhere The Town of Whitby has no real problems with garage sales, says a report by clerk Don McKay. "We have yet to find it necessary to prosecute anyone under the zoning bylaws for conducting a habitual or repetitive yard or garage sale," states the report. The clerk's department was asked to investigate regulating the garage sales by councillor Tom Edwards after he said he had a "ërescendo" of complaints about them. In his report, McKay said the Town had three complaints about garage sales in 1986 and has had only one so far this year. McKay said that while zoning bylaws do not permit habitual or repetitive yard or garage sales "the majority of people when ad- vised of these land restrictions comply with them and cooperate with the municipal law enfor- cement officer." Upon receiving the report, coun- cillor * Edwards said he was "satisfied with the comments." 4nnual FESTIVAL O FridayJune 26 to Sunday, July 5 Fun for the Entire Family Cullen Gardens & Miniature Village salutes the world's favorite flower with miniature fireworks and music at dusk. Come and enjoy a stroll through the garden Cullen Gardens & Miniature Village 300 TAUNTON RD. WEST, WHITBY, ONT. WHITBY (416) 668-6606 TORONTO (416) 294-7965 CF CHILD Trying not to be 'different' ¶UL Recycling trucks are purchased Z 7 777-,;- 7 7--t ',;7 ýb)ÊM-