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Little Sara struggles along with Cystic Fibrosis by Asm Stra bouncing blonde and fireyears old puts her favorite re cord on toe stereo dons tier roller skates and scoots happily around the kitchen carrying a picture of singer KcttaDcobok Wben I grow up Im going to marry Kevin she says tewtngjy to her mother IF she grows up her mothers ace ays a stands by the door wat cbingber And even if she does Kevin himself might not be around to pro pose San and the 17 yearold rock singer have something in common Cystic Fibrosis Its an hereditary disease which usually proves fata anywhere from birth to young adulthood for those afflicted Sara youngest of three children in the family of Walter and Murray of Acton was the healthiest of in fants at birth Two months later how ever she was losing her bloom of health Pam recalls Thats when Cystic Fibrosis was finally diagnosed She gaining any weight Mrs Murray recoiled We took her to our doctor and they began testing for the problem at Peel Memorial Hospital When nothing could be pinned down baby Sara was transferred to Toronto Hospital for Sick Children They had but Pam suspected beforehand when she heard the from a nurse and looked it up in a medical dictionary The good news was Pam and could bring their daughter home and start her therapy right away We had been preparing ourselves for a lot worse said What she prepared for though following her meeting with specialists at Sick Childrens was walking into the next room and seeing her seven pound baby daughter turned over a therapists knee and being hit in the back Cystic Fibrosis is a disease affecting lungs system mucus saliva and sweat glands Lungs and stomach become coated with mucus causing respiration pro blems and preventing proper digestion The disease discovered in the early 1950s is earned in the genes although no genetic test is available to prove its presence in parents The only way a person can know he or she is a carrier is to have a case known in the family Vie went through both our families as far back as we could trying to re call whether anyone had lost a baby in infancy There were none we could discover Yetsheandher husband are both carriers of the dis ease and their other two children Norm llandKristen 10 have a SOSO chance of being earners as well Therap began on Sara right away began receiving extra vitamins to make up for her early nutritional loss due to poor digestion She was given a respiration vapor mask treatment twice a day and was patted firmly on the back to help loosen the mucus in her chest She was fed antibiotics to ward off infection And she also received regular doses of a drug derived fro a pig pancreas to aid digestion Her special baby for mula cost at that time per case If I that Id be going through all this Id never have thought I could handle it Pam said with a smile But Ive coped so far Aboutayearago Sara began taking her medication in capsule form Up until then the medicine had been available in liquids or powder which could be mixed with applesauce The taste was not pleasant The capsules that great either theyre big 121 Cystic Fibrosis victim Sara Murray respiration therapy works Twice day she breathes special vapor to help cut down the mucus whkn collects in her lungs as a mult of the tit A COMMUNITY NEWSPAPER One Hundred and Eighth Year Issue 42 ACTON ONTARIO WEDNbSDAY APRIL 27 1983 Pages Thirty Cents This is one of the funny scenes from the Alls production of Done to school drama club under the direction of and numerous Death which will be staged Thursday Iriday and Saturday nights talented helpers It should be a great nights entertainment See The show is a two act mystery comedy starring members of the more photos on page Acton may soon have its own car compound The accident car compound Issue still hasnt been settled but some progress was made at a meeting involving auto body and tow truck operators In he area local polil and Halton Regional Police officials Friday E this Councillor Rick Bonnett Council rejects 83 pay boost Hills councillors decided not to give themselves raise at general committee meeting A report from Treasurer King indicated the On la no public sector apply to councillor so could vote themselves an of up to per cent Councillors opted for no so mayor will continue earn SIT a year and councillors Had councillors voted themselves i raise the mayors pay would have gone up a year to and councillor would have seen their wage jump to The five Hills representatives on regional council earn an additional year Peter total council pay is while councillors Miller John McDonald Mike Armstrong and Dave Whiting earn alii Last year before the province had brought in public sector wage guidelines council followed the federal government wage restraint program even though they didnt have to and themselves Just a six per cent raise Council was en titled to give themselves a raise of about 10 per cent in 1963 under a complicated formula adopted previously based on several price indexes The suggestion not to increase Cillers pay this year was made by Whiting He suggested Hills follow the regional councillors lead and vote themsetv no pay hike It was noted at the meeting that a report is from staff examining possible approvements to councillors adtbs mayors benefit package brought a complaint about the lack of a car compound in Acton to councils attention pointing out vehicles were being towed to Georgetown by the police approved tow truck operator in Hills and most were then being fined there hurting local businesses Since then the subject has been discussed at Halton Police Commission and the sub ject of meetings involving politicians and businessmen Mayor Peter Pomeroy who has been working on this problem both as a Town official and a member of Police Commission revealed the tow truck opera tor who holds the police contract in Hills Fred Tolton in Georgetown agreed at Friday meeting to tow accident damaged vehicles to a compound in Acton if one is found Who Acton will have the compound hasnt been determined yet a car compound must meet certain specifications because of security The towing tender is another matter the mayor said contract runs until August 1964 with a one year option after that if bolh he and the police agree to exercise the option Formerly there were two towing areas in Hills one covered Acton and area but when the contract was tendered last year the boundaries were redrawn dividing North up differently Pomeroy said they are looking at ing the boundaries now if both and the Milton operator agree so there can be a third lowing area in the h However for any change to be made before the contracts are up Stecles Ave must be removed from the area and put in the Georgetown towing area Only then could there be two economically viable towing areas in Hills The mayor said there are no guarantees thai Ihere will be any changes in lowing areas before the contract expires next year He said Regional Police Farce administrator Robin Hale indicated hell be looking at establishing two towing areas in Hills when the contract next goes to tender concluded Hills and businessmen here have made a good enough case lo warrant favorable consideration of a separate towing area for Acton next time around Besides the mayor Hale and Bonnet businessmen Pelilis Dan Milt Ball and Frank Tolh attended the meeting Friday Objection goes to 0MB over planned growth for Acton An objection has been lodged with the Ontario Municipal Board over plans to expand Actons sue Hills hasnt received official word yet but Mayor Peter confirmed the Town has been told a group owning about acres west of Fairy Lake behind subdivision has appealed the region Official Plan amendment to expand Actons urban boundaries The urban boundary is the limits to the area which can be serviced with water and sewers After lengthy study the region and Town announced late in 19BI that sewage problems had been solved which would permit growth of Acton Residential development is to take place east of Church ill north and south of Highway and on Mill Street West Also some industrial development is to take place on Main St North- Actons population would swell to people under the plan said the objection from the land owners on the west side of town is that their land should be within the new urban bound ary and that there are planing principles favoring their property over say Acton east said depending on when an hearing is held for the objection it could delay final approval for growth here up to a year Growth wasnt going to go ahead too soon anyway the region Town and province have been working to solve problems invol ving water supply and storm drainage from new lands to be developed Couple raised kids in 27 years sooKyo Angr citizens blast Alan Po Government wont listen to the people by Murray Citizens in Hills and Milton ore mad as h and they dont to take it any more but they dont seem to know how lo slop it because the conventional method of public participation in the system and protest doesnt seem to work because the Ontario government just wont listen Certainly the aggregate Issue is of deep concern to citizens of north Halton but the real overriding message of Thursday nights public meeting with Minister of Natural Resources Alan Pope was that the many many people no longer have any faith in the democratic system and public participation process Speaker after speaker from local resi dents and politicians to officials of groups like the Foundation for Aggregate Studies and Julian Reed told Pope the system isnt working and it Isnt much use pleading your case to the provincial government on aggregate or much else because the powers that be have already made up their minds and arent listening The message came through not Just in words but also in the mood and atmosphere of the audience of nearly 300 people at Acton High School There was no shouting you could have heard a pin drop while questions were posed and answered Many sal stony faced others shook their heads in guest at answers others muttered incredulously Possibly the clearest indication of peoples feeling was the applause Reserved at best for Pope and Assistant Deputy Minister for Municipal Affairs Milt Farrow hearty and prolonged for remarks reflecting their feelings of frustration the uselessness of fighting big government the feeling of being fed up the of the situation etc There was a fear permeating the room that motivates people lo drastic action Its difficult to say If Pope got the message He said he would take into con sideration what hed heard both about the aggregate issue and peoples feeling about system However both in his responses to remarks and his comments after the meeting he indicated he wasn t convinced people really have given up he took their attendance at the meeting to mean they still do believe in the system Pope said he would have to re view what hed heard he couldnt promise here d be many or even any changes based on peoples complaints When the system doesnt produce the results people want they become frustrated and the people of North Halton are no Pope said The attitude of the crowd was what he expected and had been warned he d find here Hills Councillor Sheldon who has been fighting the aggregate issue for years long before she entered public life said she had always believed in the demo cratic process and public participation but not anymore because it just I work She has lost faith and wished he pro in government would quit patronizing people Sheldon told Pope the people stupid they may not know exactly how to fight the government but they knew they were saying things to the government and Queens Park Just wasnt listening resident Boris said he too like many In the audience had lost faith in the system and urged Pope take that message back to Queens Park Public input meant nothing at the Niagara Escarp ment plan hearings He was one of about people who took off work to testify and found themselves up against expert lawyers at hearing who could crossexamine them It wasnt a case of the people simply dis agreeing with the government or not liking losing political battles people were really Continued on page inside number of detectives have been trans f erred back to uniform by Region a 1 Police The Citizens Rand played a great con cert Sunday and photon on A man who wounded his daughter with a pellet didnt know It was loaded pages The senior of year at Villa has been named and photo on page A boy was hit while riding on the highway on Sunday Detail on page Todays paper feature on the Hock wood Trail Riders See page Youll find Out- on page Famed choir here Friday This Friday night there will be a real treat in Acton when the Ha sill too Orpheus male choir per forms al Knox This famed choirs ap pearance here is thanks lo the efforts of Walker Lodge 311 Masons and the Knox Presbyterian Choir Director Harry Is here playing Knox Chorea piano while Kan musks director Ted Hansen looks Harry It looking forward to both he plane and for thetr sfcew Friday which starts si in and Kani For more of saw tar to story