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i PAGE 8 THE CANADIAN STATESMAN, MAY 15,2002 -V Bikers try to beat Batten disease with ride BY CRYSTAL CRIMI Sta ff Writer CLARINGTON - Local motorcyclists motorcyclists are using their hogs to try and save lives. On Sunday, June 2, bikers with all makes and models will join the Harley Owners Group for the 6th annual Bikes for Batten Disease Ride. The rare disease, which primarily targets targets children, kills three in 100,000. When HOG member Malt Flower heard his co-worker Cliff Can - had a son with the disease, he came up with an idea to help. The ride was started to publicize the incurable disease while raising funds for research. "It's a genetic disease," said Mr. Carr, whose son Dylan, now 10, contracted Batten Disease at age three. "What that means is the cells do not act properly and because the neurology usually affects cells in the brains, it eventually kills all cells in the brain. It has similarities to Alzheimer's disease, but the onset is much earlier. "Children develop normally until they get the disease, then the skills they've learned, they lose," he added. "Basically, the kids end up on feeding tubes and usually pass on from a secondary secondary disease such as pneumonia." Although Dylan seems to be'in re mission, leaving thé family in limbo and unsure if their son actually still has the disease, for many families the result is heartbreaking. "I've met too many of these families and their children and I don't get to see them again. Too many children are dying," said Mr. Carr, who is active as the vice-president for the Canadian chapter of the Batten Disease Support and Research Association (BDSRA). Mr. Carr said events such as the ride help bring hope to the families and research research has progressed; in the last 10 years three'kinds of the gene have been identified. The BDSRA hopes to soon have DNA testing available for parents, siblings and prenatal testing, to determine determine who is carrying the Batten gene. This year, the federal government is going to match the amount raised by the Bikes For Batten Disease. Money for research research will stay in Canada. Despite last year's rainy ride weather, the event managed to raise $17,000 and 110 bikes took to the road to help find an end to Batten disease. HOG is hoping to raise as much this year and with the feds matching contributions the total could hit $34,000. "It's almost like a death sentence because because there's no cure," said Ed Jakiw- chuk, co-director of HOG and chairman for this year's ride. "The more we raise the sooner there'll be a cure. Helping kids is one of the biggest things you could do. We're hoping for a big turnout. It's a good time and you get to meet other people for a worthy cause." Gus Sevink joined HOG four years ago and has since participated in the annual annual event. He said the day is a great way to fund-raise for Batten, but it's also just a fun day and helps show the community community not all motorcyclists are bad. "It is always exhilarating riding with .a large number of motorcycle riders. The noise and being in the country is always nice but the fact that so many people come out in need of a good cause...we're all out there helping," said Mr. Sevink. Bikes for Batten will begin with registration registration from 8-10 a.m. at The Metro East Trade Centre in Pickering on Brock Road just north of the 401. The police escorted ride starts at 10 a.m. sharp and is followed by a barbecue with door prizes and a show and shine. Those interested in joining can raise $50 in sponsors or pay a $10 registration fee. Sponsor sheets are available for downloading on www.durhamhog.com or from event sponsor Ab's Motorcycle Shop on 2069 Simcoe St. N., in Oshawa. For more information, visit the Durham HOG Web site. JASON LIEBREGTS/ Statesman photo CLARINGTON - Ed Jakiwcliuk will lead this year's Bikes for Batten motorcycle ride. Students welcome newest Canadians STUDENTS from page I Second World War and why he is so proud to have become a citizen. "We were in the railway station waiting for the train to take us three days to Winnipeg. Three ladies who were volunteers asked if we had money to buy food for the trip. We said no and they pulled out a $10. bill," said Judge Reiser, who noted the women even went out and bought groceries for him because he couldn't couldn't speak English, then let him keep the change. "I decided once I became established in Canada I would become become a volunteer and I did for many different causes. "Today you join the great numbers numbers of people all over the world who came to this country to start fresh: diversity diversity is the blood of Canada," he added. Students and immigrants stood with their right hand raised to repeat the oath of citizenship in both English English and French. Solange Fournier, clerk for the ceremony, said the citizenship court comes out to schools about six times a year to educate students on the citizenship citizenship ceremony. Clarington wants cut of provincial tax; mayor CLARINGTON from page I sis but I think it's more for municipalities municipalities struggling to raise money for capital projects due to lack of growth. It's for municipalities looking looking for quick fixes." Clarington, with one of the healthiest reserves in the GTA and strong growth is not in that situation, situation, notes the mayor. As well, he adds, with a triple A credit rating, bonds may not be the most economical economical way to fund projects. "I don't know the difference between financing through municipal bonds or debenture. That's why the treasurer treasurer is going to take a look at it." Energy minister welcomes input ENERGY from page I Mayor Arthurs. "1 was encouraged by the minister's receptiveness to our approach." approach." Mayor Mutton adds, "The key is, we are recognized as stakeholders. If the studies aren't to a level of the municipalities' municipalities' satisfaction, the minister will step in." Durham MF Alex Shepherd says the local MPs can continue to lobby for municipal participation as well. "I don't see why it wouldn't he appropriate appropriate to have a local representative on the hom'd," off team LOWEST PRICES OF THE SEASON! KENMORE® LAUNDRY TEAM Front loading washer. 6 wash cycles. «41032. Sears reg. 999.99.879.99 Dryer. 4 drying cycles. 2 temperature options. «81032. 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